January, 2015 Update of Lily

Lily Stealing a LEGO® Brick
It has been quite a while since I gave an update of Lily so it’s time I correct that. I am very happy to say that Lily is doing great!

The most exciting news I have is that I have weaned her off of the steroids she was on (the Prednisolone) because her mouth was doing so well with the PlaqueOff and Lysine. Hooray!

Having said that, I want to stress that you cannot stop steroids cold turkey. It needs to be done a certain way to prevent harm to the cat. If any of you are giving steroids to your cats and want to stop, make sure you discuss it with your vet before doing anything. Stopping steroids cold turkey will cause problems so please don’t do that.

Lily is not the same cat she was two years ago when I first discovered that she was sick with stomatitis. Today she is a ball of energy that can’t be stopped! She loves to run and play. One of her favorite things to do lately is steal LEGO® bricks.

I have another website that is a Harry Potter fan site. One of the things I have done on that site is build the Harry Potter LEGO® sets that I have to share on the site. That was when I found out that Lily has a passion for the little bricks because I would find her batting them on the floor.

Recently I was able to catch her in the act and I took video of her stealing a brick. I made the video for my Harry Potter site, which is why it has the site’s domain name on it, but it was so cute I just had to share it here, too!

The most significant thing about this video is that Lily picked up the brick with her mouth. She would have never done that when the stomatitis was at its worst because of the pain it would have caused. It is a very good sign when your stomatitis kitty starts to use her mouth again. Grooming is the obvious change, but playing is more subtle. Watch for any increased use of the mouth, like what you see Lily doing in the video.


Comments

January, 2015 Update of Lily — 22 Comments

  1. Dean,

    I don’t know how Lysine works so I don’t know the answer to your question. What I do know is that it has helped Lily. There was a time when I ran out and Lily went without for a week. She went downhill in that one week, which showed me that Lysine is an important part of her recovery.

    Rochelle

  2. one of my 14 cats has stomititis.it seems counterintuitiv to use lysin.isnt the immune system needed to be slowed down and not stimulated?

  3. Karen,

    I am so glad that you found my site helpful!

    I’ve got one cat who gets rat lip every now and then. Usually it clears up on its own but when it doesn’t she gets antibiotics. It might be a food allergy but I’m not willing to find out because Willow has a very sensitive gut. Any time I make changes to her diet she gets horrible diarrhea so we stay with the Iams that she’s eaten without problems for years.

    How is Merlin doing?

    Rochelle

  4. Hi Rochelle,
    I came across your web page will discussing some cat health issues with a FB friend whose cat(s) have had problems with stomatitis. I recently adopted a kitten (Merlin) who turned out to be FIV positive. We’ve had quite the roller coaster year–In addition to finding out that he was FIV, he had every parasite and worm known to mankind, then he survived parvo virus, a prolonged urinary tract infection, Fevers of Unknown Origin (FUO’s), an upper respiratory/sinus infection, and anemia. Fortunately one of the things associated with FIV that Merlin has NOT had is stomatitis–for which I am very grateful!

    However, one of my #1 cat, Chip has had a similar problem: rodent ulcers. (If you are unfamiliar (http://www.askthecatdoctor.com/rodent-ulcer.html) I think I have figured out that Chip’s problem is a food allergy. Sad to say for him, it is tuna fish and or a filler used in some cat foods. Since switching to a prescription grade cat food he has had very few flare ups.

    One of the other things that I have been convinced has helped, and your experience confirms, has been adding PlaqueOff to his food. As you noted, and as with most holistic approaches, the ROI for using PlaqueOff is not immediate. Until reading your comments I was uncertain as to what or how the product worked, but now I will be even more faithful and consistent in making sure he and my other pets get their dose every day. My #2 cat, Dakota turns up his nose when it is in his food, so I will order the kind with brewers yeast or mix in some brewers yeast for him! Lily, my poodle, practically will eat it right out of the bowl. 🙂

    Next time I stop into my vet(s), especially my feline vet, I will bring your information with me because they are all skeptical of the value of PlaqueOff. However, next to it’s value for stomatitis, here’s the next bit of great news: the last time Chip and Lily went in for dental cleaning I was told both of them would need to have extractions, but both of them “surprised” the vet and did not have nearly as many problems as anticipated. I Chip did need two, but not four, teeth removed and Lily did not need any extractions! Even if the vet won’t, I’m going to give PlaqueOff the credit. I now wonder if Lysine had been included in their diet, if perhaps they might not have done even better!

    Per the other posts I see that colloidal silver has also been helpful for stomatitis and inhibiting the development of plaque. IDK if it would help stomatitis, but I did read that Zinc also has had beneficial effects for cats with rodent ulcers. I would say it would be worth a try, but as I understand it Zinc is a trace mineral, can build up in the liver and neither we or cats should used it to excess.

    I have also read that when taking Prednisolone,or other medications that may impact the liver we (humans and cats) may benefit from adding the supplement Milk Thistle to our regimen to detoxify and support our liver functions. My vet also prescribed a veterinary quality probiotic to make certain that Merlin’s good bacteria was not wiped out with the bad and to boost his immune system.

    Vitamin C (up to 250 mg) has also benefited FIV and other immune system challenged cats, but because it is acidic must not be taken on an empty stomach. I have been giving Merlin Vita 5 liquid Vitamin C. It is in a fructose and vegetable glycerine base, which seems to mitigate the concerns about it being too acidic.

    I saw that Vit B12 was included in the protocol for some cats. When Merlin’s anemia was at a critical point, I asked the vet if we could try SQ B12 shots. Fortunately, Merlin’s bone marrow was not compromised and the B12 shots worked wonders. We are tapering him down from 1 shot per week to 1 every 2 weeks, and then hopefully 1 per month. I’m not certain how we would know if his body is processing it in other forms, but since it is a water-soluble vitamin, I will continue to give it to him some by mouth, if nothing else as a back up to the monthly shot.

    IDK about Vit D, but it is “Sunshine Vitamin” and counteracts cancer. I have often tested as low on it, my doc has me take an OTC supplement. Dr. James L Busby author of “How to Afford Veterinary Care Without Mortgaging the Kids” wrote that as far as vitamins are concerned, their benefits are the same.

    Thanks for your information about stomatitis. Merlin has been through a lot–if I can help Merlin avoid developing FIV related stomatitis, you will have blessed this little guy and my fur-babies more than I can say!
    Regards,
    Karen, Chip, Dakota, Merlin >^.^< and Lily /^.^\

  5. We use prednisone chews for my kitty, Choo Choo! He loves them! And my other cats always try to get some too!

  6. Vanya,

    I’m so sorry to hear that you and your kitty are dealing with stomatitis. It’s such an awful disease, and I don’t doubt that many stomatitis kitties are put to sleep.

    I don’t know if the steroid cream is safer than the injections, but it is easy to give to kitties because it doesn’t involve shots or swallowing pills.

    My vet wrote a prescription for the cream and I took the prescription to a specialty pharmacy where it was custom made, per the prescription. It took several months of tweaking before we got the dose right for Lily because it is a bit of a trial-and-error method of finding what does is right. We wanted to make sure Lily had enough steroid to help calm the inflammation of the stomatitis but not give her too much steroids.

    You can try asking other vets if they can prescribe Prednisolone cream if your vet hasn’t heard of it.

    As for the PlaqueOff, it takes up to eight weeks before it takes affect, and my experience with it was that it took every bit of those eight weeks before Lily’s mouth looked greatly improved. I hope this helps.

    Rochelle

  7. Hello,

    I am writing with a big concern about my cat Ferrah. She is a almost 5 years old female. She has has her teeth pulled out a year ago and her condition has only been getting worse. I have ordered Plague off and Lysine a month ago and she has been taking it but with no improvements. Actually, the opposite has been happening – I have seen clear blood on her pillow. That has not happened before.

    I am not sure what to do as my vet has been suggesting to put her down from the very beginning of the stomatitis symptoms. She said that there is no cure and that they always put the cats or dogs with thus condition down.

    I am willing to start my cat on the steroid cream. But I am not sure if my vet has heard of it and how I can get it.

    Can you please let me know how I can get it? Is the cream safer than the injections? There are so many questions in my head that I do not know which one to answer first. I am terrified by the thought of loosing my cat but seeing her crying from pain every time she opens up her mouth is killing me. She screams a lot because of the drooling. I hope your answer about the steroid cream will help me get it and start her on it and eventually help her heal. Thank you for the time in advance. I am sorry for not writing in the forum, I tried but it does not want to let me register.

  8. After reading the latest postings, I thought I’d update my story.

    Bella continues to do so well that you’d never know she’d had a problem. She’s gained weight, in fact, and often cruises the cabinet where treats are kept, asking for them! She and her sisters get the hairball variety with a crispy outside and soft inside — they all scarf them up.

    I now put a capful of colloidal silver in the water dishes that all 3 cats and my small dog use … it seems to have slowed down the dog’s plaque formation, in addition to eliminating one of the other kitty’s bad breath (from the stomatitis). She’s still got the sores on her gums, but they don’t seem to be any worse, and there’s no bloodiness in her gums or around her teeth at this point.

    They didn’t care for the powder additives in their wet food, so I gave up on it. Trying to get them to again accept a bit of fiber, to help with hairball elimination. Have to go at it teeny, tiny portions at a time.

    I figure Mattie may yet have to have more or all of her teeth removed, but the silver really has had a positive impact. And if you didn’t know Bella has no teeth, you wouldn’t — she licks up any wet food (to which I add water) with gusto, and daily, eats a fair amount of the dry food (usually Iam’s weight control/hairball, though I occasionally change because they all seem to enjoy variety).

    I just decided to try Blue Buff for my dog, and boy, yeah, sticker shock and then some! Our weather has been stormy for weeks, and in order to get him to eat herbal tranquilizers, I’ve had to offer extra yummy stuff — he doesn’t seem to care about the change in dry food, but he LOVES the wet, which is very high in good quality protein. I may try my cats on BB wet … though they are pretty much hooked on the “junk food” Fancy Feast varieties.

    Good luck to all with kitties suffering, and I hope you can find help by trying things others write about here.

  9. Stephanie,

    I hope Marley is able to transition to the Iams. All our cats love it, and I can’t afford something more expensive like Blue Buffalo.

    Rochelle

    P.S. I love the name Marley! We used to have a sweet black cat named Marley, along with Jacob and Neezer, which was short for Ebenezer. If you sense a correlation with those three names, you are correct, but they were our only “Christmas Carol” cats.

  10. My cat Marley had his teeth pulled in Feb 2015 but unfortunately it gave him no relief. Metacam and Clindamycin are keeping his symptoms manageable. I at first attempted cyclosporine but it lost it’s effectiveness after 3 months. He insists on eating dry food so I will try the Iams as you suggested. Blue Buffalo is also very small but extremely expensive. Thank you for your valuable information with this NASTY disease

    Stephanie Briggs

  11. Karen,

    It’s wonderful to hear that Bella is feeling so much better! Thank you for sharing this, as well as the information about colloidal silver.

    Rochelle

  12. Bella, who had all her teeth extracted a few weeks ago, continues to do great. Funny enough, she’s started asserting herself with her two kitty siblings. She wasn’t submissive before, but she didn’t go out of her way to be with them or play with them.

    Now, she’s stood her ground up on one of my catwalks, insisting her youngest sister (who was adopted at about the same time), yield to her. She’s more playful than ever, and I can tell she feels really good now.

    When she was getting her surgery follow-up, the vet told me another of his cat clients highly recommended colloidal silver … that it was making a huge difference in her cat’s mouth. I use it myself, so have started adding a bit to the cats’ wet food, along with the lysine powder. I haven’t yet received the Plaque Off, but it’s on its way.

    For those who decide to try the silver: Buy only true colloidal silver. Some people balk at the price and try to make it themselves. This usually results in molecules that are too big and can cause problems in humans — and I would assume, in animals — skin turns blue! And it’s toxic.

    The woman who told my vet about this gives it to her cat orally, apart from food. I don’t think I’d survive even trying that, hence putting it in the wet food. It’s virtually tasteless and odorless, and the cats don’t seem to notice.

    Good luck to all with their fur babies.

  13. I have added a forum to this site in an effort to make it easier for people to find and/or share information. I would like to invite you to take a look around and share what has worked for you (or what hasn’t), even if you’ve already shared it here. The forum will be a place where it is much easier to search for and find helpful information.

    You can visit the forum here.

    I will be posting this comment on all the pages of my site to make sure everyone who is subscribed to comments sees this, so I apologize if you get multiple copies of this message.

  14. Thanks for your kind reply note … my girls came through their procedures fine. Bella, who had all her teeth out, seems virtually “normal,” wanting to be petted, combed, snuggled. The vet kept her overnight since I was going back in the morning with the other two; brought them all home Tuesday about 6 pm. That way, she also got her pain med at the vet’s — one less struggle for me!

    Bella stayed to herself most of Wed., then has been out and about as usual. She immediately ate, drank, used litter box. My baby had 3 teeth removed, but it didn’t slow her down a bit! We’re going to monitor her closely, see how she does. I’ve ordered the lysine and plaque products, and will give to all 3 cats.

    Interestingly, it finally registered with me that my little dog, who had his teeth cleaned within the past couple of months, had similar sores on his front gums at the time. He’s been at pet-sitter’s to give the cats plenty of time to recover without him bugging them and possibly bumping their sore mouths … when I get him home, I’m going to look at his mouth again. Nothing was said by vet who did his cleaning, but I’m wondering: can dogs get it? They all use the same water bowl … guess it’s time for more research.

  15. Karen,

    I’m so sorry to hear that two of your cats are suffering from stomatitis! I also completely understand the feelings associated with tooth extractions. I cried before Lily’s surgery and wondered if it was the right thing to do. Now, two years later, I can honestly say that it was, even though she falls into the 20% of cats who are not completely cured by the procedure.

    Like your cat, Lily wouldn’t drink the water I offered her that contained an anti plaque supplement. I was so happy when I tried the PlaqueOff and found that it worked for Lily. Perhaps it would work for your cats, too. Today I give Lysine and PlaqueOff to all five of my cats.

    The foster mom who I adopted Lily from has a theory about stomatitis. She thinks that it is contagious to other cats when it is ulcerated in the mouth. It is possible that she is right. In my case, Lily is the only one with stomatitis and all the other cats eat and drink from the same bowls and water fountains as Lily. But Lily hasn’t been really bad for a long time so if the foster mom’s theory is correct, Lily hasn’t been contagious for quite a while.

    I truly hope that the tooth extraction is a success for your kitty. Please keep us posted about her progress and what works for her and your other cat.

    Rochelle

  16. Missy,

    You’ve come to the right place seeking information from people who have used Lysine. Many of the people who have commented here have used it with positive results. Hopefully someone will chime in to share is or her experience with it.

    It is one of two supplements that I give to Lily and will for the rest of her life. I know for a fact that it helps her because I once ran out of it before getting more. Lily went without the Lysine for about a week, and during that time she went downhill. Prior to this event I was unsure if the Lysine actually did any good, but now exactly how much it helps I will never again run out.

    Rochelle

  17. Thank you for all the info you’ve posted. One of my three girls goes in tomorrow for tooth extraction due to this horrible condition. I feel awful about the procedure but have become convinced after speaking with three vets and my own research that it’s the best thing to do. It still breaks my heart, thinking about it. She was a stray, like your kitty … and now about 3 years old — learned about the stomatitis more than a year ago, and we’ve already done the steroid and B12 shots.

    My youngest, also a stray, is just over 2 yr old, and she’s developed it also. One vet said, although no one seems to know why, it often infects more than one cat in a multi-cat home. Fortunately, my nearly 11 yr old Siamese seems to be OK, but she had a much healthier start than the other two.

    I’m hoping we’re catching this before it spreads into their throats, but I know it’s very severe on the one having surgery tomorrow. None of my girls are good at letting me dose them with anything, and they won’t drink treated water … so I’m dreading the short-term.

    Hoping my loves fare as well as your baby has … thanks again.

  18. I just stumbled on this site by looking up stomatitis for my kitty, Choo Choo and your page was the first listed! I haven’t had the opportunity to read it all (because I’m at work haha) but I’m going to read further later!! Choo Choo had to have all his teeth removed and his on half a steroid chew daily. I’ve read about Lysine & considered it, but wanted to discuss it with people who’ve actually tried it first.

  19. Sandy,

    You are welcome. I hope that the tooth extraction works for Cayenne. Please make sure that whoever does the surgery does x-rays both before and after to make sure there are no tooth fragments still in the gums. This is very important for cats because their teeth are very brittle and break easily when removed.

    Rochelle

  20. Thank you for all the information. My little Cayenne has just been diagnosed with this. She is just 1 1/2 yrs old. They started the steriod shots and it helped a little. I had a second vet check her and they all agree she needs her teeth removed. So we are going to start this process.

    Thank you again for sharing your story

  21. Barbara-Ann,

    How very lucky for Sebastian that he chose your BBQ grill to hide under!

    It sounds like Sebastian is having a really difficult time. You mentioned using Depo shots when he gets really bad. Last week I took Lily in for her annual check-up and my vet. Lily had been on Prednisolone (a steroid cream) for at least 1-1/2 years before being weaned off it a few months ago. I asked if Lily might suffer any health problems related to the long-term use of Prednisolone. She said that, although possible, probably not. She also said that she is much more concerned about health problems related to Depo shots. Apparently, those can be hard on a cat. I don’t tell you that to scare you, but to confirm your desire for advice.

    Also, if it helps, we used Buprenex for Lily’s pain management. It is a liquid that needs to go either under the tongue or in the cheeks to be effective. If you get this, be sure that you understand how to give it to your cat because simply swallowing the liquid will not help ease pain.

    If you’ve read my site then you probably know that I highly recommend Lysine and PlaqueOff for treating stomatitis. They might not work for every cat, but they saved Lily’s life. I don’t say that lightly. It’s just that I know how she was before these supplements and how she is now. Using them is what allowed us to wean her off the Prednisolone (something that should never be done cold turkey – always follow a vet’s instructions to wean off of any steroid!).

    You asked if the steroid was compounded for Lily. Yes, it was. My vet wrote the prescription and I took it to a specialty pharmacist in my area and they made it specifically for Lily. I found that it was most cost effective to ask for a 90 day prescription. It saved me a lot of money to get it that way instead of monthly.

    I have no experience with Vitamin D and cats but maybe someone else does who can share his or her experience.

    As for urinary infections, I am not aware of a connection between UTIs and flair ups.

    The topic of food for stomatitis kitties is a big one and I’m not very knowledgable in all the different options. I do know that some people have used a raw meat diet, others use expensive prescription foods. I give Iams to Lily. She had all her teeth removed and the Iams food has very small kibbles. She can easily swallow them without needing to chew them. She has been great on the Iams, as have all of my other cats (we have five cats and they all eat the Iams). Several people have shared what they feed their cats in comments on this site.

    I have no experience with interferon but a couple of people have posted comments about it. One woman (Anne Leandersson) said that it didn’t help her cat very much and a man (Jimmie Roan Sr.) said he used it and that it did seem to help. Here are links to their comments about interferon:

    http://stomatitisincats.com/treatment-for-stomatitis/comment-page-2#comment-3293
    http://stomatitisincats.com/treatment-for-stomatitis/comment-page-2#comment-3280
    http://stomatitisincats.com/treatment-for-stomatitis/comment-page-4#comment-7047
    http://stomatitisincats.com/treatment-for-stomatitis/comment-page-2#comment-2874

    I hope this is helpful.

    Rochelle

  22. Hi Rochelle and Lily,
    I am new to your site but not Stomatitis. My Sebastian is 10+ yrs old maybe 11. We found him in an ice storm paralyzed and starved under our BBQ grill 10 years ago. Then in 2011 I noticed him doing a weird thing with his tongue kind of like an ocean way. We went to vet and he a tumor/growthon the inside of his jaw. I would have not been able to see it as it was all the way back. The vet’s said it was cancer probably. Biopsy came back as lymphoplasmacytic stomatitis. Vet removed as much as he could. I then took Sebastian to dentist that would do the X-rays before/after the extractions. She was conservative took the most back teeth left one pre-molar top and bottom,canines and incisors. She also took more of the tumor out. We have been doing the L-lysine powder he hates that little blue spoon. We also do Convenia shots and Depo-Medrol when it’s bad. So I really need some advice. The back sides of his throat are very red and his gums are not great especially around the pre-molar the gum is ragged and slightly coning away from the tooth. I have given him Dexamethasone half a pill by mouth does anyone use that? Also has anyone noticed urinary infections when the gums flair up? I had feed Sebastian wet food with a tiny spoon he lets me open his mouth and I place the food at the back of his tongue. I use Fancy Feast classeic Turkey & Giblets. He has gained 2 lbs. I also give him Ideal Balance (Hill’s) not prescription grain free chicken and potato. Does anyone recommend anything? Or raw? I do give him cat chow too, a biti imagine it’s his crack cocaine it give him a bit with water and he drinks the juice it makes. I know I’m rambling and sorry for that. Hope to gain great info from all of you. Loved the Lego burglar video!!!

    Has anyone added additional Vitamin D to their cat’s diet?. I have read a foreign article that it helps but cannot locate and was wondering if anyone has used this protocol and if so success/dosage amounts?

    Also, I read about interferon omega feline? Not sure where everyone is located in the world. I’m in New Jersey USA.

    Adding to Sebastian’s history the tumor/growth inside his mouth was in the back of his jaw. Has anyone experienced that? The doctor’s said it was like an “!” but sideways meaning it was bigger near the molars and was actually growing down his throat. That is why he compensated eating by rolling his tongue like a wave to push food to other side. Rochelle the steroid you use in Lily’s ear is it compounded especially for you? I hope any of Sebastian’s history helps any of your kitties. All the best. Barbara-Ann and Sebastian

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